Big hearted bikers help Jeans for Genes to give children a 'road' to the future Monday 13 August 2007 PDF Print PRESS RELEASE - August 2007 For more information please contact: Lisa Pettifer PR and Fundraising Officer Tel: 0207 163 6911 Email: firstname.lastname@example.org Rosalind Freeborn Head of Communications, Tel: 0207 163 6906 Email: email@example.com The world renowned Ace Cafe Reunion aims to raise £100,000 for research into genetic disorders. Bikers from across Europe will be helping to give children with genetic disorders a future when they attend this year’s Ace Cafe Reunion. Thousands of riders make the annual pilgrimage to the legendary Ace on the old North Circular in London and this year they’ll be aiming to raise £100,000 for Jeans for Genes. The money will help to fund the creation of the Jeans for Genes Genetic Roadmap. Researchers at the Institute of Child Health (the research arm of Great Ormond Street Hospital) want to identify the ‘main roads’ - the key genes which cause genetic disorders. They can then move on to the B roads and gradually build more and more of the ‘roadmap’ so they can understand more clearly the causes of genetic disorders. Andy Copp, the Dean of the ICH says; “There are lots of different pieces of information that come from different sources about genetic diseases. It’s only when we get the full picture (the entire road network, not just the location of the main towns and cities!) that we’ll be able to design the best methods of treatment.” Every half an hour a child is born in the UK with a genetic disorder or birth defect. There are more than 4,000 known genetic conditions, many of which have no treatment or cure. The Ace Cafe Reunion Weekend takes place on the 7th/8th/9th September and bikers can get involved by having their ride-in to the Ace on Saturday 8th sponsored. Entry is simple – just visit the Jeans for Genes website at www.jeansforgenes.com/acecafereunion to register and download a sponsorship form. All the riders get the chance for a break at the Jeans for Genes check point in Brunswick Square, close the ICH in central London. Between 10am and 5pm, they can get their entry cards stamped and get the weekend off to a great start by meeting up with friends. The ride then carries on to Ace where the bikers’ cards will be entered into a prize draw. Attractions at the Cafe will also include Stormin’ Norman with his supercharged twin-engined Triumph 'Conquest', a motorcycle celluloid and DVD show, DJs and live music. Mark Wilsmore from Ace Cafe London says: “Bikers and jeans are the perfect combination so we’re delighted to be involved in creating the Jeans for Genes Roadmap! Far from the stereotypical image, bikers can be incredibly generous and warmhearted and if they get to ride at the same time as supporting a fantastic cause, so much the better!” -ENDS- Notes to editors: Picture shows Mitchell, 15 (left), who was born with Apert Syndrome, and his two brothers Harrison, 10 and Fraser, five. Jeans for Genes is an ‘umbrella charity’. At its heart are four charities: • Great Ormond Street Hospital Charity www.gosh.org • The Primary Immunodeficiency Association (PiA) www.pia.org.uk • The Society for Mucopolysaccharide Diseases (MPS) www.mpssociety.co.uk • The Chronic Granulomatous Disorder (CGD) Research Trust www.cgd.org.uk In 2007 the proceeds of Jeans for Genes Day will also benefit three ‘guest charities’. These are: • The Sickle Cell Society www.sicklecellsociety.org.uk • The National Deaf Children’s Society www.ndcs.org.uk • Fragile X www.fragilex.org.uk The Ace Cafe Reunion is now in its 14th year. The cafe is on the junction of Beresford Avenue and the old North Circular Road, between the A40 and the A404 (Harrow Road). More details can be found on their website www.ace-cafe-london.com This press release was distributed by ResponseSource Press Release Wire on behalf of Jeans for Genes in the following categories: Men's Interest, Sport, Motoring, for more information visit http://pressreleasewire.responsesource.com/about.