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Press Release
12 February 2009

St Valentine’s Day 10K Love Runs to be held across the UK for Action Duchenne

Muscular Dystrophy Charity holds 7th annual nationwide series of ‘Love Runs’ to raise money for research

Action Duchenne, the Duchenne Muscular Dystrophy Charity, is holding a series of 10K runs across the country in Battersea Park London, Bute Park Cardiff, Gosforth Race Course, Newcastle and Heaton Park, Manchester on Valentine’s Day, Saturday, 14th February 2009. There will also be a 5KM Family Fun Run for children to take part in and for those who prefer a shorter distance with post-Christmas fitness.

The events start at 11am at all locations, with the exception of the London run which starts at 10am, and will see over 2000 people covering the distance, with all proceeds raised on the day going to the charity. From just twenty people running in Battersea Park seven years ago, the Love Runs are now the biggest annual fundraising event for the charity to support families and fund research into the disease.

Duchenne Muscular Dystrophy affects 1 in 3,500 male births in the UK, and is the most common and severe type of muscular dystrophy - sufferers are diagnosed usually by the age of 5. Patients with DMD and Becker Muscular Dystrophy (BMD) are boys and young men who lack dystrophin, a protein that is critical to the structural stability of muscle fibres. Patients develop progressive muscle weakness. Duchenne affects all muscles including the heart and respiratory system leaving young people paralysed by late teens and many patients do not live past their twenties.

Mark Silverman, a parent and Director of Action Duchenne said, "The Love Runs are such an important event for families affected by Duchenne. The events have grown in popularity in recent years and to see thousands of runners taking part across the country, shows us that awareness of Duchenne and the work of Action Duchenne, has really taken off."

Nick Catlin, CEO of Action Duchenne said, “This is a fantastic day for all those who come to participate and watch. The races are exciting and fun – and it is heart warming to see so many people support the events for such a good cause. From a small idea supported by a few, we now have events being held nationwide that not only increase awareness of this devastating disease, but also raise money to fund important research into new treatments. On behalf of the people living with Duchenne and their families, we thank all who will be joining in these events.”

More information about how to take part in or sponsoring the ‘Love Runs’ can be found on the Action Duchenne website; www.actionduchenne.org

-ends-

Notes to Editors:

About Action Duchenne

Action Duchenne (formally Parent Project UK) was set up by Duchenne families in 2001 to promote new research for a cure for Duchenne. The charity has a strong record in funding research and has to date funded 8 major projects costing over £1m and has lead the £1.6m DoH funding of the MDEX project. These projects have enabled much needed early work to be completed on exon skipping and other therapeutic approaches.

Action Duchenne holds an international conference every year to bring together researchers and families to exchange new research developments and provide a vital meeting venue for scientists.

In 2005 Action Duchenne launched the Duchenne Patient Registry, the first National Duchenne database that holds gene information of people living with Duchenne and can be used to speed up the recruitment of patients for clinical trials. www.dmdregistry.org

In 2006 Action Duchenne launched a comprehensive learning and behaviour toolkit for use by parents and education professionals.

For more information please visit: www.actionduchenne.org

Editors Contacts:

Nick Catlin
CEO, Action Duchenne
Tel: 0208 556 9955
Email: nick@actionduchenne.org



Andreina West
PR Artistry Limited
Tel: 01491 639500
email: Andreina@pra-ltd.co.uk



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