iphone and iPad developer launches festive app on iTunes store and donates proceeds to charity dedicated to combating devastating life wasting disease
Rantmedia has launched a Christmas iPhone & iPad app, Santa’s Sleigh Ride, with 15% of proceeds from sales donated to the charity Action Duchenne. The app costs just 69p to download from the iTunes store, http://itunes.apple.com/gb/app/santas-sleigh-ride/id47766816...
Action Duchenne is the only charity that campaigns for research and treatment of Duchenne Muscular Dystrophy (DMD).
The disease affects one in 3,500 male births in the UK, and is the most common and severe type of muscular dystrophy – sufferers are diagnosed as children usually by the age of five and rarely live past their twenties.
The app is ideal for gamers of all levels – easy to play yet highly addictive. Santa and his reindeer are in training for their annual Christmas Eve dash - travelling as far as possible through the ultra-festive surroundings. The duo travel past Christmassy villages, up and over snow topped hills, while avoiding the many seasonal objects that block their way.
Anton Faulconbridge, Director at Rantmedia said; “We wanted to use our expertise and skills to really make a difference to those who need it most. Our Santa app is a great way to have fun at Christmas yet also remember the true spirit of giving and charity. Our hope is that this app might go viral and raise thousands to support such a deserving cause as Action Duchenne’s.”
Young Saul Catlin, aged 11, who has Duchenne said; “Santa’s Sleigh Ride is a really cool app and makes you feel like it is Christmas already.”
Saul’s Dad, Nick Catlin, who is CEO of Action Duchenne commented, “We are delighted to continue to work with Rantmedia who has supported the Charity with their development of our Patient Registry and our website.
“For many families living with Duchenne, Christmas can mark a difficult time as another year passes with a decline in health. Our cause is striving to raise funds to find treatments and a cure for this devastating disease. Successful iPhone/iPad apps like Santa’s Sleigh Ride could generate lots of much needed funds, so we are calling on as many people as possible to download and enjoy the game and support our cause at the same time. ”
Notes to Editors
Rantmedia develops apps and games for a wide range of platforms - iPhone, iPad, Android, Windows Phone and BlackBerry.
Established in 2003 and based in Cardiff, Rantmedia has many well known clients, including Jaguar Rover, Marine Conservation Society, Business Network International (BNI) and Action Duchenne.
For more information please visit www.rantmedia.com
About Action Duchenne
Established in 2001 Action Duchenne aims to support and promote innovative research into a cure and effective medicines for Duchenne/Becker Muscular Dystrophy. The charity, which is led by Duchenne families, aims to promote awareness of the condition, to improve care services, and provide access to a range of educational and support/development programmes for people living with Duchenne at every stage of the condition. This is achieved by working in partnership with government agencies, NHS and care organisations, other charities, academic, scientific and research groups, and biotech companies worldwide.
Action Duchenne is actively campaigning for best practice in care for Duchenne based on the publication of an international consensus document in Lancet Neurology in Jan/Feb 2010. The published article was the product of an extensive review by 84 international experts in Duchenne Muscular Dystrophy diagnosis and care, and was supported by the Centers for Disease Control (CDC) in the US. It provides an expert guide to recommendations on the multidisciplinary care that should be available to all individuals with Duchenne. Several Duchenne patient organisations including Action Duchenne and the TREAT-NMD network have helped to produce a ‘Guide for Families’, based on the original academic article, which is written in language accessible to all without a medical background.
Since 2003 Action Duchenne has provided £4m for research projects and partnerships. The charity has worked with the MDEX consortium, Department of Health, and the Medical Research Council to deliver new clinical trials for Duchenne drugs. In addition, it has been instrumental in developing projects with biotech companies both in the UK and US including key projects with AVI Biopharma and Summit.
In 2005 Action Duchenne launched the DMD Patient Registry, a national database that holds gene information of people living with Duchenne that is used to speed up the recruitment of patients for clinical trials. For more information please visit: www.dmdregistry.org
In 2008 Action Duchenne launched the Include Duchenne project in partnership with Decipha. This programme addresses the learning and behaviour needs of those living with Duchenne. In 2011 Include Duchenne won the National Lottery Award for Best Education Project for Decipha. For more information please visit: www.decipha.org
Action Duchenne promotes social inclusion within the community for young men living with Duchenne through its Genius programme. For more information please visit: www.actionduchenne.org/geniusproject
In 2010 the National Advocacy Council was launched to spearhead the lobby for government funding for research into Duchenne and to improve access to Standards of Care. www.actionduchenne.org/NAC
Patrons of Action Duchenne include: actress Helena Bonham-Carter, cellist Julian Lloyd-Webber, journalist & broadcaster Martin Bashir and radio broadcaster & media trainer Susan Bookbinder. In addition, Richard Goodman, one of Great Britain’s leading young athletes is an Ambassador for Action Duchenne,
For more information please visit: www.actionduchenne.org
CEO, Action Duchenne
Tel: 0208 556 9955
PR Artistry Limited
Tel: 01491 639500
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