Internationally, May is Vasculitis Awareness Month and what better way for Scots to support this great cause than by signing up for a charity fundraising event in Glasgow’s Pollok Country Park, Pollokshaws Road?
The ‘Twilight in the Park’ event, on the evening of Saturday 13 June 2015, is organised by Scotland’s only Vasculitis charity, the Lauren Currie Twilight Foundation. It will include a 24 foot outdoor cinema screening of a Twilight film after a 5km themed sponsored walk in support of vasculitis sufferers in the UK.
The walk takes place from 7:00PM. Visitors will walk the route through the darkened woods (you will not be alone) and the organisers say, “watch out when the sun goes down!”
Pollok Country Park is a superb setting for the walk, having been voted Europe’s Best Park in 2008.
Tickets will cost £10 for adults and £5 for children. Free passes to Twilight in the Park are available for fundraisers. Adults raising a minimum of £50 and children raising a minimum of £25 for The Lauren Currie Twilight Foundation will obtain free entry. Tickets for the event can be purchased here: http://www.eventbrite.co.uk/e/twilight-in-the-park-tickets-1...
The Lauren Currie Twilight Foundation was set up by Kilmarnock-based Grant and Adrienne Currie following the tragic death of their 15-year old daughter and only child Lauren in 2010. Lauren had suffered from Granulomatosis with Polyangiitis (formerly known as Wegener’s Granulomatosis), a variant of the auto-immune disease vasculitis.
Grant Currie said, “We want as many people as possible to take part in this great walk and raise money for our objectives. The funds will be used to advance research into the relatively unknown condition vasculitis.
“The Twilight in the Park walk and film are a great way to honour Lauren and celebrate her life. It’s also going to be great fun and an unusual social event for those who like to help others.”
Dr Hilary Jones, patron of The Lauren Currie Twilight Foundation, has featured in a video explaining the condition, which can be found here.
Images of previous fundraising events are available on request.
We would be delighted to arrange interviews with Grant Currie.
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The Lauren Currie Twilight Foundation
What is the background to The Lauren Currie Twilight Foundation?
Lauren was only 15 when she tragically and prematurely lost her battle with vasculitis on October 23 2010 at Crosshouse Hospital. Lauren died from Wegener’s granulomatosis – a form of vasculitis which had remained undiagnosed until the final hours of her life. Lauren’s lungs had been fatally damaged by vasculitis, which resulted in internal bleeding and contributed to her death.
The charity was founded within a couple of days of Lauren’s death by her parents, Grant and Adrienne. The charity was named in Lauren’s memory as a tribute to their daughter’s inspirational character and features ‘Twilight’ in the title in recognition of the love she had for the Twilight books and the films. The charity was set up to help and support anyone affected by vasculitis, to raise awareness of the disease throughout the United Kingdom and to fund dedicated research that seeks to identify and improve treatments.
Lauren’s charity was formerly registered in Scotland in December 2010 with the Office of the Scottish Charity Regulator (OSCR). Charity Registration Number SC041934.
What are our charity objectives?
Vasculitis has no known cause, no cure and can be fatal if left undiagnosed. The charity set out key objectives in our constitution covering awareness, education, research and patient support. The charity meets these objectives from public donations and the proceeds from our own charity events. The Foundation does not receive any government funding.
The charity patron, Dr Hilary Jones, has produced a charity awareness video that provides general information and awareness of vasculitis. Dr Hilary had an integral role in raising the awareness of meningitis in the UK and LCTF have appointed him patron to support the heightening of awareness for vasculitis.
What is Vasculitis?
Vasculitis is a medical term meaning inflammation of blood vessels. It can be primary (occurring on its own) or secondary (occurring as part of another condition). Some people with vasculitis test positive for antibodies to constituents of certain white blood cells (anti-‐neutrophil cytoplasmic antibodies or ANCA) and are said to have ANCA vasculitis.
Who gets vasculitis?
Vasculitis is an uncommon illness. About 20 in every 100,000 people get ANCA vasculitis every year in the UK. Vasculitis can affect all age groups. Some are mostly diseases of childhood (e.g. Kawasaki), whilst others persist throughout adult life (ANCA systemic vasculitis). Some principally affect the elderly (e.g. giant cell arteritis).
What causes vasculitis?
• In most cases the cause is not known. Many experts think that the illness is the result of infection in people who were born with a certain genetic predisposition.
• Vasculitis can also be caused by Illnesses which trigger inflammation in the body such as rheumatoid arthritis and inflammatory diseases of the bowel.
• Medicines associated with vasculitis include certain types of antibiotics (e.g. quinolones, sulphonamides, beta-lactams), anti‐inflammatories, the contraceptive pill, some types of fluid tablets (thiazides) and flu vaccines.
• Rare types of cancer (paraproteinaemia, lymphoproliferative disorder) can occasionally cause vasculitis.
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