Following reports that the number of hip replacements for the under 60s has risen by 76% in the last decade, Spica Warrior (www.spicawarrior.org), the UK’s only Developmental Dysplasia of the Hip (DDH) dedicated charity, is calling for greater awareness of the condition and effective early screening of babies.
DDH occurs when the ball and socket hip joint fails to develop correctly and whilst not life threatening, if left untreated it can lead to disability, long-term pain, arthritis and ultimately hip replacements.
Founder, Natalie Trice, who is also a member of the International Advisory Board for the International Hip Dysplasia Institute and author of Cast Life - A Parent's Guide to DDH, said, “With an ageing population, and the continuing late diagnosis of DDH in babies, children young adults, we weren’t shocked by the results out today. We are speaking to an increasing number of people whose DDH was diagnosed late and have subsequently faced years of surgery and hip replacements.
“When it comes to DDH, early diagnosis is vital. A consistent, strict screening process and professionals being aware of the signs of DDH could mean the difference between healthy hips and a child who ends up in constant pain. My son was a late diagnosis and he is now six and still enduring operations and uncertainty but and we aren’t alone.”
Hannah Purdy, 21, commented, “Hip Dysplasia has played a major part in my entire life. I was often in excruciating pain and had a hip replacement when I was 17, which was really tough. I set up HappyHips and support nearly 200 young people through hip issues, many of whom are facing a hip replacement before their 40s. I believe better screening and early detection could change this and make life so much better for many.”
Lena Court said, “My daughter was diagnosed with no hip sockets at all when she was 16 months old. She spent 11 consecutive months in plaster from chest to ankles and repeated surgeries have failed to stabilise her hips. She now uses crutches and a wheelchair on bad days and has frequent dislocations and will need hip replacements when she's 20. Something needs to change.”
Lisa Staines, another parent added, “When our child had a late diagnosis seven years ago, help and support was, and sadly still is, virtually non-existent. Many professionals have no knowledge of the condition and we were left to scrabble around for information on our own. Spica Warrior will fill that gap, giving parents much needed advice and hopefully educating health care providers”.
“I was diagnosed with DDH and ended up having 28 total surgeries and finally had and hip replacement when I was 15yrs old. I just had a little boy who also has DDH but I knew what to look for. This disorder needs to be talked about more so parents know what to look for and I am glad Spica Warrior is now here to help,” added Sarah Boehm.
Those most at risk are babies where there is a family history of hip problems, those in the breech position or with a fixed foot deformity or torticollis. Not all cases are identified at birth but if parents notice uneven creases in their child’s legs and buttocks, clicking of the hips or a limited range of motion it is vital they speak to their GP or Health Visitor.
More details can be seen at http://www.spicawarrior.com
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* The analysis, based on Hospital Episode Statistics (HES) data for England, showed that in 2004-5 patients under 60 underwent 10,145 hip replacements, rising to 17,883 in 2014-15.
Spica Warrior is the only UK based charity dedicated to raising awareness of DDH and the character based is on our son, Lucas, who has shown huge courage and strength during his six year journey with the condition.
We want to empower others by giving them the knowledge they need to move forwards.
We offer easy to understand information about DDH so that parents know exactly what is happening to their child.
Natalie Trice is a mother, wife, author, blogger and writer and lives in the UK. She has two sons, and her second, Lucas, was diagnosed with DDH when he nearly five months old.
Ever since, Natalie has worked tirelessly to raise awareness of the condition that affects so many children and adults around the world. As well as writing about it on her blog and in the media, in 2015 Natalie’s first book, Cast Life – A Parent’s Guide to DDH, was published, with the foreword written by Professor N. M. P Clarke Professor N. M. P Clarke, and is now selling globally.
Natalie has now set up the UK's only DDH dedicate charity, Spica Warrior, and is a member of the International Advisory Board for the International Hip Dysplasia Institute.
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